Wolff Family To Hold Benefit To Raise Funds For Wheelchair Accessible Van

By Dusten Rader

drader@post-journal.com

Area bikers will ride nearly 100 miles in honor of a local boy in need of a wheelchair accessible van this weekend.

A benefit to help raise funds to purchase a van to transport Kevin Wolff, a 6-year-old Fletcher Elementary School student, will be held Sunday.

The benefit will feature the 90-100 mile motorcycle ride, which will start and finish at The House That Jack Built, 3041 Route 430 in Greenhurst. Along the ride, participants will collect cards at five different stops to create a poker hand, which will award cash prizes. Registration begins at 9 a.m., and the ride starts at 11 a.m. Registration is $20 per driver, and $15 for passengers, which includes food and a soda. In addition, the event will include a steak fry or chicken dinner, live music, which was donated by Smokin’ 45 and Naked Grace, a Chinese auction for baskets and gift cards, drawings on prizes such as a 46-inch flatscreen television and a Nintendo Wii that was sold at a discount to the family by the Lakewood Sears.

According to Stacy Wolff, Kevin’s mother, her son has been diagnosed with seizure disorder, severe intellectual disability, Lennox-Gastaut Syndrome, macrocephaly, global developmental delays and autistic features. Although Kevin is 6, he remains at a 6-9-month-old level of mental development, but he has recently made progress in his level of awareness and physical development due to a trial medication called ONFI and the placement of a gastrostomy tube.

“For three years Kevin didn’t gain any weight, so we got a vehicle and a small carseat, but once he got the G-Tube in he doubled his weight and he’s gotten too big for the vehicle,” Mrs. Wolff said. “The plan is to get a wheelchair-accessible vehicle, so he could sit in that instead of a carseat. He also has been dealing with 15-20 daily seizures, which the trial medicine helped with, but now he’s starting to have them again. We have to travel to Buffalo, and he is uncomfortable in his carseat. We’d like to get the wheelchair-accessible van to continue his treatment, include him in activities and get him outside because he loves the outdoors.

“Kevin is exciting to be around, and even when you have a bad day you look at him and he’ll make you smile,” Mrs. Wolff continued. “We’ve never needed anything up until this point, and this is a really big thing that we need – so it’s for a good cause.”

Mrs. Wolff’s mother, Terri Pangborn, father, Shane, and brother, Shane Jr., as well as a motorcycle riding club called RD Extreme, have rallied to help organize the event.

“It’s amazing how generous people are, and how much they really do care,” Mrs. Pangborn said. “My husband has talked about moving out of the area before, but we didn’t because we wouldn’t know anybody. Here everybody pulls together for those who need help.”

Mrs. Wolff, who attended Jamestown High School, graduated from Jamestown Community College in 2012 with an associate degree in medical office technology. She is currently attending JCC to acquire a second degree in computer information systems. She works at The Resource Center and Aspire, where Kevin receives services. He also receives therapies from Fletcher Elementary School.

For more information, call 450-9418, 901-3394 or search for “Bikers For Those in Need: Kevin Wolff” on Facebook.